Sue Friedman, Executive Director of Facing Our Risk of Cancer Empowered (FORCE) has written an exceptional letter to the The United States Preventive Services Task Force (USPSTF) taking issue with some of their proposed guidelines for who they think should have access to genetic testing.
An excerpt from the article Sue posted on the FORCE website:
“The USPSTF has recently released a draft of guidelines of genetic counseling and testing for BRCA. As currently written, these guidelines have gaps that will directly affect patient access to genetic counseling, BRCA testing, and preventive services.”
Sue goes on to say:
“As currently written, these guidelines have gaps that will directly affect patient access to genetic counseling, BRCA testing, and preventive services.”
I popped over to USPSTF’s website to gather more information on this and see what I could figure out.
This is some of what I found in the ”Risk Assessment, Genetic Counseling, And Genetic Testing for BRCA-Related Cancer: U.S. Preventive Services Task Force Recommendation Statement Draft” (to see the full draft for yourself, click here.)
“This is a B recommendation. The USPSTF recommends against routine genetic counseling or routine BRCA testing for women whose family history is not associated with an increased risk for potentially harmful mutations in the BRCA1 or BRCA2 genes.”
In response to the USPSTF’s statement above, Sue Friedman says:
“As currently written, these guidelines have gaps that will directly affect patient access to genetic counseling, BRCA testing, and preventive services.” To see the rest of the article written by Sue on this issue, click here.
Genetic testing saves lives. There is no way to argue that fact. I believe as an adult, I should have the personal choice to pursue genetic testing. Isn’t this America? Land of the brave and home of the free?
We MUST speak up, we must let our voices be heard on this issue. It truly is a matter of life and death!
As I mentioned in the opening statement of this post, Sue has already written an excellent letter to petition this. The letter can be seen in its entirety here.
This affects all of us, and we need your support. We ask that you add your name, city and state to this letter, and to please share on all of your social network platforms (email, facebook, twitter, Linkedin, etc). We need to spread this message quickly and all over the U.S.
Please, don’t delay, send your full name, city and state to Sue Friedman and let her know that you stand behind FORCE.
“The only thing necessary for the triumph of evil is that good men do nothing.”
Thank you, very much!
Email your full name, city and state to: firstname.lastname@example.org